These posts are related to both our Cerebral Palsy (CP) and Selective Dorsal Rhizotomy (SDR) journeys.
With winter comes the dreaded winter boot shopping! If you or your child wear AFOs or another type of orthotic, you likely can relate to the struggles you come across when finding the right boots. In brief, shoe shopping for AFOs has often been a challenge for us and you can read about that here. However, this post is to share some of the tips and tricks we have learned over the years when it comes to AFO winter boot…
October is here and it is one of our favourite months of the year in our house. Not only is there Thanksgiving and Halloween, but another day that is close to our hearts – World CP Day! World CP Day is on October 6th. This day is to celebrate those with cerebral palsy (CP), their families and all those who support them. It is also a day for awareness and to ensure those with CP have the same rights and…
This time last year I am sure many of you were excited for a new year, a new decade and all the stuff you had planned or hoped for like I was. Then 2020 took a turn a few months in and changed the rest of the year. Last year was not what anyone expected and there was a lot of loss, pain, fear and anger happening in this world. We felt these emotions too, but there were good things…
I think everyone can agree 2020 is not the year we expected. Many of us hoped by the end of the year things would be better and that we could celebrate the holidays like we usually do. Alas, it won’t be a “regular” Christmas for most of us. We knew Covid-19 was out there but we personally didn’t know anyone close to us who had it…until now. Warning, this is a long one! Let’s rewind back to 7:00am the morning…
Hi! It has definitely been a hot minute since our last post and to say a lot has happened is an understatement! I don’t think 2020 is the year any of us expected and I hope this e-mail finds you and your loved ones well. It is a time of uncertainty, change, movements, loss and so many emotions…a year for the history books that’s for sure. When we first heard of Covid-19 we had no idea it was literally going…
Like many of you, our last few months have flown by and we are now in full holiday mode! Evie completed her swimming lessons and will be moving onto the next level next year. She also finished her skating lessons where she learned to stand up, jump and balance. She even started gliding while pushing with one foot. She really enjoys skating so we plan to go skating as a family more often, especially since Wes is finally starting to…
Hi! It has been a while. Since our last post, spring turned to summer and summer turned to fall (and I have been working on this post for weeks but had technical difficulties). Any ways, school ended, we had a two month summer holiday and now school has started again. Also, Evie is now 19 months post op! So, a lot has gone on. Time to share some highlights! After a very busy school year (Evie had a great first…
Spring has finally sprung! After what felt like a long and cold winter, Spring is here! The tree leaves are coming out, the flowers are starting to grow, the days are longer, people seem happier and we are spending more time outside. Evie has been learning about plants and worms. There have been quite a few days of rain which often leaves the side walk covered in worms big and small. The kids love watching them and I’m impressed Evie…
Here we are. Evelyn is now one year post-op and has been living spasticity free for 365 days! Woohoo!! Exactly a year ago she was having Selective Dorsal Rhizotomy surgery at St. Louis Children’s Hospital with the amazing Dr. TS Park!! It was and continues to be a life changing moment in our lives! Leading up to SDR I was feeling so many emotions – anxious, excited, worried, happy, blessed, nervous, grateful and SCARED! So SCARED! Scared about the procedure. …
Here is our update since our last post! Evie has continued to take swimming lessons and attending physio sessions at both Grandview and SMILE. She has now completed four sessions at Train Like Heroes and she is loving it! One, she is very interested in super heroes and pretending to be one (especially from The Incredible or Bat Girl). Two, Michael the owner and her trainer is a great addition to the already awesome team we have supporting Evie. He is…