Four years ago I started an Instagram account in hopes of sharing Evie’s CP journey. Since then, I have had the opportunity to connect with many people within the CP community including parents from around the world. Parents, like me, who are trying to figure out this new world they were thrust into once receiving a diagnosis for their child. I have valued these relationships, have been helped by many and hope to pay it forward. I want to help…
Hi! It has definitely been a hot minute since our last post and to say a lot has happened is an understatement! I don’t think 2020 is the year any of us expected and I hope this e-mail finds you and your loved ones well. It is a time of uncertainty, change, movements, loss and so many emotions…a year for the history books that’s for sure. When we first heard of Covid-19 we had no idea it was literally going…
Like many of you, our last few months have flown by and we are now in full holiday mode! Evie completed her swimming lessons and will be moving onto the next level next year. She also finished her skating lessons where she learned to stand up, jump and balance. She even started gliding while pushing with one foot. She really enjoys skating so we plan to go skating as a family more often, especially since Wes is finally starting to…
Hi! It has been a while. Since our last post, spring turned to summer and summer turned to fall (and I have been working on this post for weeks but had technical difficulties). Any ways, school ended, we had a two month summer holiday and now school has started again. Also, Evie is now 19 months post op! So, a lot has gone on. Time to share some highlights! After a very busy school year (Evie had a great first…
Spring has finally sprung! After what felt like a long and cold winter, Spring is here! The tree leaves are coming out, the flowers are starting to grow, the days are longer, people seem happier and we are spending more time outside. Evie has been learning about plants and worms. There have been quite a few days of rain which often leaves the side walk covered in worms big and small. The kids love watching them and I’m impressed Evie…
Here we are. Evelyn is now one year post-op and has been living spasticity free for 365 days! Woohoo!! Exactly a year ago she was having Selective Dorsal Rhizotomy surgery at St. Louis Children’s Hospital with the amazing Dr. TS Park!! It was and continues to be a life changing moment in our lives! Leading up to SDR I was feeling so many emotions – anxious, excited, worried, happy, blessed, nervous, grateful and SCARED! So SCARED! Scared about the procedure. …
Here is our update since our last post! Evie has continued to take swimming lessons and attending physio sessions at both Grandview and SMILE. She has now completed four sessions at Train Like Heroes and she is loving it! One, she is very interested in super heroes and pretending to be one (especially from The Incredible or Bat Girl). Two, Michael the owner and her trainer is a great addition to the already awesome team we have supporting Evie. He is…
Happy New Year! Can you believe it is now 2019?! Someone the other day said it was 20 years ago now that it was 1999! That blows my mind and reminds me that I’m not as young as I sometimes think. Ha! I hope you all had a wonderful holiday season! Our little family saw lots of family, played with friends, enjoyed board games, read a lot of books, battled never ending colds (seems like everyone has been sick), ate…
Happy Holidays! 2018 is winding down and what a year it has been!! Looking back at the last year it still amazes me everything that happened. Evie is doing great and continues to develop new skills and strength. We are so thankful she was able to have SDR though the journey has been overwhelming at times. From getting to St. Louis, to the surgery itself to the hundreds of hours of therapy, there were some harder times but all the…
Tis the season! How is it December already!? We have been enjoying the holidays for a few weeks now but time is flying (like I always comment in every post. haha). We have been busy shopping, decorating and making cookies…all the fun holiday stuff! Our Elf Tinsel (Elf on the Shelf ) has also returned and the kids have been enjoying looking for her each day. We also went and watched our local parade and tree lighting and visited Santa at…