It has been a busy 48 hours since we have arrived in St. Louis but we have arrived and are well! After two days of travel (one snowy day, one sunny day, two pretty happy kids, lots of Moana singing, Bubble Guppies watching and snacks), we arrived at our hotel on Friday afternoon. We knew we were in St. Louis as soon as we saw the famous arch! After getting organized and settling in, we explored our hotel and…
Tomorrow we will be making our way to St. Louis, Missouri and we will arrive on Friday. One week today Evelyn will be having her life changing surgery, Selective Dorsal Rhizotomy (SDR) with the amazing Dr. Park at the St. Louis Children’s Hospital. Time has flown by! Even though we have been getting organized for days, it doesn’t feel like it is all really happening and I bet it won’t hit me personally till we are at the hospital on Monday…
On Friday, January 26, 2018 we held our first “official” fundraising event for Evelyn in support of her life changing journey. It was a fantastic evening! When we first started discussing this whole fundraising aspect of Evie’s SDR journey, it was really important to me that we held an event for families. We have such wonderful friends and many of them I met during my mat leave with Evelyn. I have known their kids since they were small and they…
Happy New Year! It is only a week into 2018 and a lot has happened! The biggest news is we now have a date for Evelyn’s surgery!! Over Christmas we asked to be put on the cancellation list for SDR. Most of the families we know who have gone through this did the same and they all went earlier. Due to the overwhelming support we have already received, we knew we would have enough funds to pay for the initial…
It has been almost 48 hours since we officially shared with the world about Evelyn’s Life Changing Journey and the amount of support I have already felt is overwhelming! Deciding to go for SDR was not an easy decision at first. We were scared, terrified even. We kept hearing “She isn’t that bad” and “That is too drastic!” Cutting into your baby’s spine and having a permanent procedure done is scary!! Surgery is scary, so we sat on it. As…