With winter comes the dreaded winter boot shopping! If you or your child wear AFOs or another type of orthotic, you likely can relate to the struggles you come across when finding the right boots. In brief, shoe shopping for AFOs has often been a challenge for us and you can read about that here. However, this post is to share some of the tips and tricks we have learned over the years when it comes to AFO winter boot…
Happy Wednesday! I just have to say, I am really enjoying learning about different warriors from around the world and hope you are too! Everyone has a unique journey but there are things in each story I have found relatable, which brings us closer together as a community and as people. Looking forward to learning more! I would love to share more stories about other warriors but also therapists, adaptive clothing brands etc. so send me a message if interested…
I met this week’s warrior through a Cerebral Palsy (CP) Facebook group. She is a young woman who recently started her own blog and was looking to connect with others. We started chatting and decided to collaborate! One of her goals is to help with CP awareness and inform others about the issues those with CP face. I am very excited for you to learn more about her. Below is her story in her own words. Meet Maheen Hi! My…
Four years ago I started an Instagram account in hopes of sharing Evie’s CP journey. Since then, I have had the opportunity to connect with many people within the CP community including parents from around the world. Parents, like me, who are trying to figure out this new world they were thrust into once receiving a diagnosis for their child. I have valued these relationships, have been helped by many and hope to pay it forward. I want to help…
Tomorrow we will be making our way to St. Louis, Missouri and we will arrive on Friday. One week today Evelyn will be having her life changing surgery, Selective Dorsal Rhizotomy (SDR) with the amazing Dr. Park at the St. Louis Children’s Hospital. Time has flown by! Even though we have been getting organized for days, it doesn’t feel like it is all really happening and I bet it won’t hit me personally till we are at the hospital on Monday…
It is not uncommon for a group, company or sports team to have their own language, their own abbreviations and their own acronyms . The special needs and cerebral plays community (CP) is no exception! It took a little while to figure out what some other members of the CP community were talking about when I first started reading various social media groups. Luckily some of my fellow CP parents helped this Mommy out! This post will focus on acronyms…
It has been almost 48 hours since we officially shared with the world about Evelyn’s Life Changing Journey and the amount of support I have already felt is overwhelming! Deciding to go for SDR was not an easy decision at first. We were scared, terrified even. We kept hearing “She isn’t that bad” and “That is too drastic!” Cutting into your baby’s spine and having a permanent procedure done is scary!! Surgery is scary, so we sat on it. As…